Cerebral Palsy Alliance

Posts Tagged ‘frustration’

Disabled Parking Nazi

Notice to the General Public: Put your brain into gear and your mouth in neutral!!!

If you still don’t understand what I mean…  use your eyes and your brains FIRST before using your mouth! I am so FED UP with my wife and I being abused by people for using disabled parking spots, when transporting my son, just because we (the drivers) are able bodied.

Is it not enough that our lives are complicated through having a child with a disability that we have to be inflicted by people who believe it is their right to launch a verbal assault on my wife and I, for using a disabled parking spot, without politely inquiring first?

Read more: Disabled Parking Nazi

Is the struggle worth it?

When I was a boy I loved getting my Hot Wheels cars and pushing them along the ground. Watching as they crashed into each other or got under mum and dad’s feet as I flung them across the kitchen floor.  I loved assembling the long tracks, clamping one end to the dining room table and watching as they whizzed down to the bottom, just in time for me to collect them and take them up to the top again.

Daniel loves his hot wheels cars; he has over 400 of them.

He got them out one day and I watched him as he tried to push one of them across the carpet, desperately attempting to enjoy the same feeling that I had when I was a little boy.

Read more: Is the struggle worth it?

The struggle between heart, mind and body

We spoke with Daniel the other day about what subjects he would like to elect for next year at school.  Daniel is in High School now and is in the process of selecting what subjects he would like to study for next year (Year 9).

The school has been amazingly supportive of everything that Daniel has tried his hands at, and although Daniel throws himself at everything with reckless abandon, there is always varying degrees of success.

Read more: The struggle between heart, mind and body

DET Funding and your responsibilities (Winning the War!)

This blog has been prompted by one of my readers who made the following comments on another blog I had written. Patricia writes (and I have edited this slightly to reduce space), My twins Julian and Joanne are in year 2 attending a public school. Rodney do you have any information on how the DET funding Support is utilized by a school? I keep getting told that its at the discretion of the school how to use it. I just happen to know (by accident) recently that Julian has approval for 28 hrs 50 mins of DET Funding Support. Hence I was surprised the school could not provide an aid for Julian to be able to attend the cross country carnival which he was very enthusiastic to attend and was instead told by the teacher to remain at school. Hi Patricia, Thank you for your questions.

You raised two important points:

Read more: DET Funding and your responsibilities (Winning the War!)