Cerebral Palsy Alliance

Archive for August, 2008

Playing Games with a Disability

Let me ask you something … if you could encourage someone to engage in physical activity to the point where they are self motivated to do it again and again, you would want to know about it right?

At the risk of sounding like an advertisement for Nintendo, I write the following blog post …

It’s only been in the last 5-8 years, during which Daniel has been using the computer, that I can finally justify to my mother (now I am 41) that the last 30 years spent in front of a video screen has paid off.

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… and the bad birth medal goes too …

I laugh at how competitive we are!

Not only do we like to compete in sports and achievements as a nation but even with life experiences we love to compete.

Have you ever heard a bunch of mums over a coffee talking about who had the worst birth?

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Always Ask Questions

Like most parents of a disabled child we are not medically trained in psychology, paediatrics, physio, occupational therapy, etc. so you need to ask questions.

When Daniel was 3 years old our physios were attempting to get Daniel to reach for pieces of a puzzle (large floor puzzle) while sitting on his bottom on the floor.

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A Second Child?

Picture of mum and dad with a child Daniel was around 8 months when the doctors asked if we were going to have a second child. For Penny and I this question posed a greater risk than just having a second child with a disability, it meant risking Penny’s life a third time.

Our first attempt at a family (five years prior) resulted in Penny contracting a rare condition called Trophoblastic Disease. This is a form of cancer that affects 1 in every 10,000 first time pregnancies and has a nasty side effect in that it makes the women’s body behave as if it is pregnant and, instead of growing a baby, it grows a tumour.

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