Cerebral Palsy Alliance

Posts Tagged ‘professionals’

To whom it may concern

So your child has just been diagnosed with cerebral palsy? I’m sorry, that sucks. It really does. No, your lives won’t be the same, nor will that of your child. I guess it’s still too early to be able to tell how things will be. It’s okay to mourn what could have been. We all wonder sometimes. Just remember to find the good bits in the current moment, however small or fleeting (given time, you really will find some).

And no, neither one of you did anything to deserve this. Even though I know you do, you shouldn’t feel guilty for this. Hopefully time will fade that a little. It sounds lame, and I know you want a reason as to why you and not someone else, but there really isn’t one.

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The devil’s in the detail…

Anyone with a disability will agree that one of the major pitfalls – beside the physical aspect – is the paperwork that we have to contend with. Not only must it have been responsible for deforesting large areas of the planet, I also think that, if someone took the time to collect all my paperwork, they’d be able to build a carbon copy of me from scratch and mimic my life and daily routines in ridiculous detail.

Off the top of my head here’s a list of the various organisations that I reckon have a file on me:

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How ‘the week that was’ ended

Since I’m sure you’re all on the edge of your seats to find out how my aforementioned adventures ended, I thought I’d tell you …

Reiki: I have yet to have a second session, as my Reiki person (and friend) is sick. Isn’t everyone? And no, I don’t think its swine flu. I am still feeling pretty balanced, but will be having another session when I can.

Read more: How ‘the week that was’ ended

(Part 3) Survival strategies – missing people and your own things

When you are away from home – unable to do very much for yourself, because the environment isn’t equipped for you, and also fearing that something is very wrong with your health – minutes equate to hours and you begin to miss your own things and your own people faster than you might ever have imagined.

Being in one room for a few days, the little things really start to matter. Your mind goes into overdrive and you begin to think too much about, well, everything. You dwell on the grey areas because you have the time.

Read more: (Part 3) Survival strategies – missing people and your own things