Cerebral Palsy Alliance

Posts Tagged ‘health’

Fatigue

Sometimes, even at three in the afternoon, the hardest thing for me to do is stay awake. That’s not unusual if you’re elderly, but I’m only thirty-something. For years I thought it was just me. At school, I tried to snooze in silence. A typical school day would leave me weary, but exam time would leave me exhausted to the point of not being able to hold a coherent conversation.

If this sounds familiar, be comforted by the fact that it is not just you. From my experience, what I refer to as my sleepy monkey is just another added bonus of the CP fun ship. Read more: Fatigue

Pain

I heard a statistic the other day that both comforted and horrified me. Apparently 66-70% of people with cerebral palsy experience physical pain. I’ve never liked being a statistic – it’s so predictable and boring – but in this case it seems that I am one.

Not to call the whaa-bulance, but it was oddly comforting to find out that I wasn’t alone. For me pain can vary between a stiff pulling sensation on my joints, an intense tingling, a strong burn, or a dull ache throughout my entire body. The stiff pulling sensation is the most common sensation for me, which, after a day of concentrating, will leave me with the dull ache throughout my entire body. Read more: Pain

Halves and crayons

I was watching one of those make over shows last night where one of the contestants had recently had his leg amputated. In the end, they gave him a new ‘high tech’ prosthetic leg and he commented that, as a result, he felt like a ‘whole’ person for the first time since his accident.

It’s a very personal issue. We will all have a different perspective on it. I understand his sentiment. I understand the feeling of being ‘less’ or ‘not as good’ when I compare myself to others (which we should never do, but do anyway … particularly as women). That said, I have to add that I’ve never felt ‘incomplete’ because of my disability or any other reason.

Read more: Halves and crayons

Wake up calls

They say this cerebral palsy thing isn’t progressive. I would say that, while the initial brain injury isn’t, its impact can be. As you get older, things become harder, even things you do everyday. Moving was much easier when I was younger. When I was younger, I was also swimming once a week and having physio twice a week.

’Til I was about sixteen, it seemed like keeping that part of me in check required complete devotion. It was boring and monotonous to me, especially as I felt young and indestructible. Around that time, I started cutting back on exercise and physio in favour of school and other less mundane things.

Read more: Wake up calls