Cerebral Palsy Alliance

Posts Tagged ‘friends’

Help can be an arrow to the heart

It’s a really hard topic to write about. If you have a physical disability, chances are that you’ve needed help (the unpaid kind) from a friend or family member at some point in you life. Have you ever had those instances of help thrown back at you in the ‘heat of battle’? I have. I suspect most of us have. Here is my take on why it sucks.

If you’re anything like me, you hate asking anyone for help in ways that your able-bodied peers don’t usually need help. I have stayed awake all night rather than ask for help, and spent an extra hour or two on the floor rather than hassle someone unnecessarily. My reasoning being, I choose to live my life as independently as I can. This means accepting that from time to time I will be uncomfortable and inconvenienced because I can’t want independence on the one hand and expect others to stop their daily lives on the other.

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Pity

Anyone with a disability will know what it’s like to feel pitied – to be considered one of those ‘less fortunate’. It’s a sentiment that can follow us wherever we go. Sometimes it’s one of those flashing road signs that everyone can’t help but notice. At other times it’s more subtle like a gas that takes all the air from the room. So how can it be dealt with, without turning you into a frustrated or embittered creature from the deep?

The act of pity comes from a well-meaning place. It’s a well-intended act of kindness. It is also an assumption on their part. Some parts of our existence are more complicated than they are for most, it’s an inescapable fact. Able-bodied people are aware of that and feel bad for us – for what they have ‘have’ and we ‘lack’.

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Ten reasons I should be paid to stay home

10. I’m more of a night person than a day person. Thus, it could be seen as intrusion into my ‘beliefs’ to make me work on any day ending in ‘day’. They all do, so I really should stay home.

9. Gold Class cinema is way more entertaining than office meetings. And they serve popcorn.

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Wake up calls

They say this cerebral palsy thing isn’t progressive. I would say that, while the initial brain injury isn’t, its impact can be. As you get older, things become harder, even things you do everyday. Moving was much easier when I was younger. When I was younger, I was also swimming once a week and having physio twice a week.

’Til I was about sixteen, it seemed like keeping that part of me in check required complete devotion. It was boring and monotonous to me, especially as I felt young and indestructible. Around that time, I started cutting back on exercise and physio in favour of school and other less mundane things.

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