Cerebral Palsy Alliance

Archive for November, 2009

It is not everything… a sentiment worth reiteration

Recently, I’ve read a lot of articles, blogs and the like, highlighting what is often referred to as ‘CP successes’. That is to say, people who have achieved some level of success, personally or professionally, while living with cerebral palsy.

The fact that these people are seen as a success because they have achieved something, despite having a disability, annoys me greatly.

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Going shopping – observances of things that remain true

Yesterday I did something radical. I took a day of leave just to go shopping and spend time with a friend. I’ve never done that before. It was awesome and I totally recommend it. My brain took a nice deep breath, but my eyes were still on alert and I noticed a lot of things.

Firstly, weekdays between 11 am and 4 pm must be ‘stare at those who are mildly different’ day for the elderly. As I’ve mentioned before, I’m not normally one to notice such things. I’m way too happy in my own little world, but yesterday, every white haired person seemed to look my way with a puzzled expression. I don’t know why. Maybe it’s some new equal opportunity for your eyesight scheme that I’ve yet to hear of, or maybe my flatmate had written something on my head that only the over 80s could see. Regardless, I really wanted to do a little dance for their enjoyment.

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Alchemy

How do you take what should be a happy time and make it ‘suck’ a little? Take that happiness and have it overshadowed by the need to prove a point.

Every human knows the feeling of needing to prove the naysayers wrong. Every person with a disability has this feeling on any new adventure we embark on.

A few weeks ago, I got myself a puppy named Alchemy. I already own a cat, but I grew up with dogs and, what can I say, I saw that little face and fell hard.

Love is all around … that was until one of my carers made the comment that I shouldn’t have a dog because, ‘I wouldn’t be able to look after it’.

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Help can be an arrow to the heart

It’s a really hard topic to write about. If you have a physical disability, chances are that you’ve needed help (the unpaid kind) from a friend or family member at some point in you life. Have you ever had those instances of help thrown back at you in the ‘heat of battle’? I have. I suspect most of us have. Here is my take on why it sucks.

If you’re anything like me, you hate asking anyone for help in ways that your able-bodied peers don’t usually need help. I have stayed awake all night rather than ask for help, and spent an extra hour or two on the floor rather than hassle someone unnecessarily. My reasoning being, I choose to live my life as independently as I can. This means accepting that from time to time I will be uncomfortable and inconvenienced because I can’t want independence on the one hand and expect others to stop their daily lives on the other.

Read more: Help can be an arrow to the heart