Cerebral Palsy Alliance

Archive for October, 2009

To whom it may concern

So your child has just been diagnosed with cerebral palsy? I’m sorry, that sucks. It really does. No, your lives won’t be the same, nor will that of your child. I guess it’s still too early to be able to tell how things will be. It’s okay to mourn what could have been. We all wonder sometimes. Just remember to find the good bits in the current moment, however small or fleeting (given time, you really will find some).

And no, neither one of you did anything to deserve this. Even though I know you do, you shouldn’t feel guilty for this. Hopefully time will fade that a little. It sounds lame, and I know you want a reason as to why you and not someone else, but there really isn’t one.

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Dearest Lilly

We all know that I read a lot of blogs. I read them to see what other bloggers are writing. I also read them to see the types of comments people make about them. Today, while I was blog trawling, I came across the following comment relating to educating kids with disabilities in America.

‘Why do we even bother paying for education for these kids?’ wrote a commenter named Lilly. ‘Their parents chose to have kids and now their disability and special needs amount to a rise in taxes. Their parents just get a lawyer and fight and fight until the school district ends up paying for special programs. Why? Why not divert the funds for gifted and talented students instead of kids who will need societal support their whole life.’

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Pity

Anyone with a disability will know what it’s like to feel pitied – to be considered one of those ‘less fortunate’. It’s a sentiment that can follow us wherever we go. Sometimes it’s one of those flashing road signs that everyone can’t help but notice. At other times it’s more subtle like a gas that takes all the air from the room. So how can it be dealt with, without turning you into a frustrated or embittered creature from the deep?

The act of pity comes from a well-meaning place. It’s a well-intended act of kindness. It is also an assumption on their part. Some parts of our existence are more complicated than they are for most, it’s an inescapable fact. Able-bodied people are aware of that and feel bad for us – for what they have ‘have’ and we ‘lack’.

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Ten reasons I should be paid to stay home

10. I’m more of a night person than a day person. Thus, it could be seen as intrusion into my ‘beliefs’ to make me work on any day ending in ‘day’. They all do, so I really should stay home.

9. Gold Class cinema is way more entertaining than office meetings. And they serve popcorn.

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