Cerebral Palsy Alliance

Archive for June, 2009

My 6 month sabbatical

If you could take 6 months off work (or however it is you spend your life) where would you go?

1st Month – Melbourne, Victoria, Australia I would stay at The Grand Mercure in the centre of town. Their beds have the best doonas and amongst the best wheelchair accessible bathrooms. I’d spend my time just wandering around, going to gigs, pubs and talking to interesting strangers. Oh, and having manicures and pedicures.

2nd Month – Devon, England. My mum is from Devon. I’d like to see if the pictures that I have painted in my head from all of her stories are anything like the real Devon. I also want to try a real Cornish Pastie.

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The Hierarchy

Most of us have had the experience of an able-bodied person thinking that they are ‘better’ than us as they are able-bodied and we are not. But what about times where you are in the company of someone who has the same condition as you, only they can walk and you can’t. What if, because of this, they assume they are better than you?

I know it sounds weird and uncomfortable. It sounds like some new lame form of discrimination and, well, I’m thinking that it could well be.

Let me describe my adventure into the dark side of human nature. I was out to dinner with a few people the other night and, just by chance, most of us had disabilities. I and another person had cerebral palsy. They could walk.

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Comments

‘You’re so normal for a disabled person. You’re still pretty.’

I’m sure I’m not the only person who encounters such backhanded comments. How I deal with them is dependent upon the situation.

Firstly, let me say, I realise that in saying such things most people don’t intend to insult. They actually intend to compliment. It’s just that well, they are so eager to say what their thinking, that they don’t play it over in their minds first. We are all guilty of that from time to time.

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I can

What did you do on the weekend? I did lots of things, but the most life altering thing I did was get a new iPod. Yes, most people would suggest that ‘meeting someone’ or something like that would be life altering, but, to me, having all of my nearly four thousand songs at my side is very close to the best thing ever …

When it comes to me and my music, you need not understand. You need just nod, smile and accept the irrationality of it all, okay? Let’s move on …

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